1 month ago
Tuesday, August 10, 2010
Fauxhawk a Naturale
Crafty Hands
Tuesday, August 3, 2010
My Baby Boy Turns 1 month
April 11, 2010
Easter Weekend
Dax's Baby Blessing
March 21, 2010
Monday, August 2, 2010
Back To The Hospital
About two days after we were home, I noticed that Dax hadn't pooped since a couple of hours of being home from the hospital. I started getting nervous and talked to Jason about my concerns. So we decided that if he didn't poop by 3:00 that day we would take him to Children's Close To Home (Urgent Care). It was a Sunday and so we couldn't get him into the pediatrician. So they took an X-ray to check for bowel obstruction and then did a blood test to check his biliruben levels. The X-Ray looked great, but they found his biliruben levels were extremely high at 25. The doctor that saw him told us that at a 28, he would have to have a blood transfusion. So she told us we would have to admit him to Children's Hospital. She said that he would have to go under some bili lights and would probably get to leave in one or two days.
When we got to the hospital, we found out that he was dehydrated and an IV would be necessary. They began doing heel pricks every six hours to test his bili levels and make sure things were headed in the right direction. The problem is that a newborns blood isn't stable like a bigger person and so his blood kept hemalizing and clotting and so they weren't able to get an accurate reading. So that meant more heel pricks for him.
One day went by, then two, we started seeing his levels decreasing, but never enough to go home. Three days, then four they took him off of the lights for six hours to see how his levels would react and they jumped back up, so that meant more lights and more foot pricks. They kept us on the pediatric cancer floor in the hospital because he was a full grown baby and was too big for NICU and it was the cleanest place in the hospital for a newborn. The rooms in between our rooms both had long time residents who were being treated and were missing all of their hair. As I sat in my room with Dax, all I could think about was how grateful and blessed we were that this was all we were being seen for. But it was so hard to be there knowing what these other families around me were going through. Still they had no answers as to why Dax's levels weren't dropping. They did more blood tests, testing liver enzymes which came back negative. Finally after six days of being in the hospital, they had good news, they would release us as long as I took a wallaby(portable bili-lights) home and took him daily to Urgent Care and had his bili levels checked. Yep, more heel pricks.
By the time we left the hospital in both heels he had been pricked over 40 times and they could no longer squeeze blood out fast enough, so instead they had to do peripheral blood draws (out of both arms). I was a complete wreck, here was this poor helpless little baby and he just couldn't get a break. They still had no idea what his diagnosis was and so we were referred to a hematologist. Finally 3 weeks later we had a diagnosis. Hereditary Spherocytosis. Apparently it has something to do with the protein breaking down the blood cells and causing them to be so fragile that they burst which causes anemia. Now that we know that, I have to check occasionally where his spleen is and make sure that it is soft. Other than that most children by the age of six have a spleenectomy. So, so, so scary to hear when you bring a new baby into the world, but I am so grateful that he is home and not at the hospital and that our family is together and whole again. Not seeing my children and not having everyone together was so hard, I don't know what I would have done without all of the help that we received from my parents. Also having Jason by my side in the hospital while all of this was happening, really made things so much better because it would have been so hard to go through it alone.
When we got to the hospital, we found out that he was dehydrated and an IV would be necessary. They began doing heel pricks every six hours to test his bili levels and make sure things were headed in the right direction. The problem is that a newborns blood isn't stable like a bigger person and so his blood kept hemalizing and clotting and so they weren't able to get an accurate reading. So that meant more heel pricks for him.
March 20, 2010
One Happy Family
Family Visit Dax For The First Time
Introducing...DAX
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